Saturday, August 14, 2010

Skeeber Skeebs

Well it's been quite a whirlwind of a week. Mason had his (late) 6 month check up on Tuesday. The Nurse Practitioner noticed his head right away. I've always been concerned with the shape of Mason's head, but the doctors where we previously lived didn't seem to show any signs of concern so I just let it go. Missy (the NP) noticed it right away and referred us to Cranial-Tech so we could get an evaluation done to see how severe his head is.

He has moderate-severe Plagiocephaly and Brachycephaly with associated facial and ear asymmetries. Basically that means his head is flat in the back and bulges on the sides and his ears aren't symmetrical. He also has issues with the muscles in his neck and they are so tight on one side you can actually see them pulling through the skin when they tilted his head around.

Cranial-Tech recommends the DOC band treatment for Mason. He would wear the band for 23 hours a day for about 4 months (maybe longer). It's super important we get this taken care of ASAP because the longer we wait the harder it will be to treat.

So what are we waiting for? Well insurance has denied our claim because of a specific exclusion. They won't cover any of the costs for treatment. Which means we have to figure out a way to come up with the $4,000 it costs for one round of treatment (meaning if he needs to wear the band for more than 4 months we'd need another $4,000 at that point).

There's nothing like looking at your happy smiling baby who has no idea what's going on and knowing in your heart that there is nothing you can do for him. It's pretty much the worst feeling in the world. I've heard "don't beat yourself up", "don't worry about it", "it is what it is", "you're not a bad mom", and "everything will be okay".

Nobody will truly understand until they are a mother in the same situation. You can't not worry about it and you do beat yourself up. It's your sole purpose in motherhood to make sure your children are happy, healthy, and well cared for. When you fail at one of those things it makes you feel like crap. Plain and simple I feel like crap and I DO feel like a horrible mother.

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